Supporting Your Families with Rare Epilepsy VIP Siblings

Educates parents and caregivers on the impact of a rare epilepsy on siblings, shares learnings from the Sibling Voices Survey, and offers ideas to deepen communications with VIP siblings.

Helps parents and caregivers show appreciation and love to their children without a rare epilepsy. It’s easy to drop an encouraging note into a lunch box or book bag to brighten your child’s day.

Intended for teachers or other key persons in your VIP sibling’s support circle, this form explains the impacts of living with a rare epilepsy on your child, and how the recipient can offer support and encouragement.

It’s important to figure out what role works best for your VIP sibling to make sure they’re comfortable during a medical emergency. Use this form to guide those conversations and make a plan that’s right for your child.

Pull out this journal whenever you feel the urge to draw, write, or doodle your thoughts.

Positive messaging and thought-provoking, age-appropriate prompts encourage VIP siblings to express themselves through this fun and colorful journal.