Your Family and Rare Epilepsy

All rare epilepsy families face challenges—it’s a reality of living with a rare seizure disorder. You know better than anyone that caring for a child with a rare epilepsy requires considerable energy, time, and flexibility. And that has impact on every member of the family—including your VIP sibling. As helpful and involved as they may be with their brother or sister, VIP siblings have needs and concerns of their own. Sometimes, they feel alone.

Siblings Feel It Too - Unhappiness

of siblings reported being unhappy sometimes or a lot of the time.

Siblings Feel It Too - Depression

of adult siblings reported a history of treatment for clinical depression.

Siblings Feel It Too - Anxiety

of young siblings expressed fear that their sibling might die.

Siblings Feel It Too - Irritability

of young siblings reported feeling irritable or grumpy sometimes or a lot of the time.

Many siblings say they have learned to feel compassion and are more understanding of others who are disabled. Other findings showed that siblings can often feel stressed, anxious, or fearful.*

* A recent study called the Siblings Voices Survey looked at the emotional impact of growing up with a brother or sister with severe epilepsy.

How We Can Help

We’re delighted to offer you these unique resources to inform and encourage your families and your amazing VIP siblings.

VIP Siblings Tools & Resources Callout

Tools & Resources

Access at your fingertips to digital downloads of the Parents & Caregivers Kit, VIP Sibling Kits, and more!